Well Adam is a month old and what a one month birthday he had. He was up all night the night before because he was having some breathing trouble. He then started off the day by turning blue in his swing. So Adam and I were treated to a day at St. Lukes doing a bunch of testing. We got to have blood work done which took 4 sticks (poor guy). He was so worn out after the first that he slept through the next three though. We then got the pleasure of hanging out in radiology. Upon arrival we were greeted by a lady about as friendly as a rabid dog. She was quick to inform me that our appointment for an upper GI was not until 3 (this was about noonish) I told her we were told to come in for a chest x-ray right away so here I was. She mumbled something to ensure I knew that I was ruining her day. Since the waiting room was full, Adam and I got special treatment and were ushered into a room to wait with some inpatients. Our favorite was a very elderly woman who kept begging me for ice chips. After our x-ray and upper GI, we got to have an ultrasound and a lower GI. It was a very long day.
On top of reflux, Adam has tracheomalacia and laryngomalacia (possible bronchomalacia). See below for details if you so desire. Anyway - this just adds a new level of complexity to our world here. I'll spare you the cussing and blasphemy. He should outgrow this by 3-6 months so they say. So that would mean that in approximately 2-5 months I'll get some sleep. Awesome.
Soft Airways http://www.phoenixchildrenshospital.com/emily/LG/996.html What it is Airways carry air from the nose to the lungs. Some children are born with airways that are too soft. Soft airways do not hold their shape, and air does not flow through as well as it should. There are three places where airways can be soft: the voice box, the windpipe, and the breathing tubes. A person may have softening in one, two or three parts of the airway. This softening is called malacia (pronounced: muh-lay'-she-a). Signs and symptoms When the voice box (larynx) is too soft (laryngomalacia), you may hear a high-pitched, crow-like noise when the child breathes in. This noise is called stridor. When the windpipe (trachea) is too soft (tracheomalacia), you may hear a high-pitched, crow-like noise when the child breathes in (stridor). The child may also wheeze, cough or choke. Severe tracheomalacia can also cause very short spells of no breathing (apnea). Your child may turn blue during these apnea spells. When the breathing tubes (bronchi) are too soft (bronchomalacia), you may hear wheezing when the child breathes out. Medicines used to treat asthma usually do not help the wheezing from soft airways. Note: may not help the wheezing, but will help the breathing and opening of the airways. Treatments: When children with soft airways are active, upset, eating or have colds, their breathing may be noisy. When they are calm and lying on their stomachs, their breathing may be quieter. As children grow, their airways get larger and firmer. In most children, soft airways are gone by two years of age. Some children may have noisy breathing until they are school age. If children can breathe and are growing, their soft airways are not treated. They will grow out of it. If your child has trouble breathing because of soft airways, your child's doctor may ask you to see an ear, nose and throat doctor or a pediatric pulmonologist for treatment. The doctor may do a test called a bronchoscopy to look at your child's airways.
On top of reflux, Adam has tracheomalacia and laryngomalacia (possible bronchomalacia). See below for details if you so desire. Anyway - this just adds a new level of complexity to our world here. I'll spare you the cussing and blasphemy. He should outgrow this by 3-6 months so they say. So that would mean that in approximately 2-5 months I'll get some sleep. Awesome.
Soft Airways http://www.phoenixchildrenshospital.com/emily/LG/996.html What it is Airways carry air from the nose to the lungs. Some children are born with airways that are too soft. Soft airways do not hold their shape, and air does not flow through as well as it should. There are three places where airways can be soft: the voice box, the windpipe, and the breathing tubes. A person may have softening in one, two or three parts of the airway. This softening is called malacia (pronounced: muh-lay'-she-a). Signs and symptoms When the voice box (larynx) is too soft (laryngomalacia), you may hear a high-pitched, crow-like noise when the child breathes in. This noise is called stridor. When the windpipe (trachea) is too soft (tracheomalacia), you may hear a high-pitched, crow-like noise when the child breathes in (stridor). The child may also wheeze, cough or choke. Severe tracheomalacia can also cause very short spells of no breathing (apnea). Your child may turn blue during these apnea spells. When the breathing tubes (bronchi) are too soft (bronchomalacia), you may hear wheezing when the child breathes out. Medicines used to treat asthma usually do not help the wheezing from soft airways. Note: may not help the wheezing, but will help the breathing and opening of the airways. Treatments: When children with soft airways are active, upset, eating or have colds, their breathing may be noisy. When they are calm and lying on their stomachs, their breathing may be quieter. As children grow, their airways get larger and firmer. In most children, soft airways are gone by two years of age. Some children may have noisy breathing until they are school age. If children can breathe and are growing, their soft airways are not treated. They will grow out of it. If your child has trouble breathing because of soft airways, your child's doctor may ask you to see an ear, nose and throat doctor or a pediatric pulmonologist for treatment. The doctor may do a test called a bronchoscopy to look at your child's airways.
3 comments:
Inspiring and beautiful! If you have any questions please feel free to check out http://www.tracheomalacia.org and http://www.bronchomalacia.org
Good luck to your family, i wish you all the best!
such a great blog i wish you all the best some how i found you when i was looking for stuff on our sons birth defect, i wish you all the best.
Post a Comment